A World Where There Is No PMD
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Meet Abraham, he's a special little boy who was born with a gene mutation. He has a rare disease called Pelizaeus Merzbacher Disease (PMD). The white matter/myelin didn't form properly in his brain. He is unable to hold his head up, sit, stand, walk or talk.
Here are some items we made to help Abe and some items that we purchased. We want to share our ideas and some of the things we have learned on our journey. If you have any questions or would like more information, please call Carla Schauer (208) 773-5115 or E-Mail: carlaschauer@verizon.net |
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The PMD Foundation: 1307 White Horse Road, Suite 603,
Voorhees, NJ 08043 Tel.
609-443-9623
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