Q3 Treasurer's Report

A big thank you to the PMD community, as we continue to make strides in 2025! We have raised almost $38,000 in the first 9 months of the year, following up on the almost $80,000 raised in 2024. 

In July, we received a $20,000 donation from Ionis Pharmaceuticals, which is intended to help further the education and connectivity of the broader PMD community. We look forward to providing updates on specific projects funded by this grant.

The Foundation remains in strong health with $85,000 of additional unrestricted funds plus $50,000 to fund the second half of a 2-year research grant. The grant will help fund research of ASOs for therapeutic treatments to treat genetic mutations of PMD that are not currently in the ongoing clinical trial. Currently, the trial is only open to duplications of the PLP-1 gene, this research is to determine if the same therapeutic approach will see positive results in other genetic diagnoses of PMD. The Board remains committed to finding the best use for our funds to further the mission of the PMD Foundation.