Dave lives in Mexico, NY with his wife Julie, and son Jaden, who turned 16 December 2017. Dave has been an active member of the Foundation since the beginning and has provided a great amount of leadership to the Foundation over the years and has served many roles during his tenure with the Foundation.
Jeremy has a passion for volunteering his time with various organizations including the United Way, Big Brothers Big Sisters, and his local church. The PMD Foundation is one organization that Jeremy, along with many other PMD families, has identified as a great resource of information and support following the diagnosis of his son Camden.
have been a PMD dad for 28-plus years now, and James has kept me honest all this time. I am semi-retired from a 30-something year career as a special education teacher. I have worked as a volunteer for parent advocacy groups here in Vermont for a long time, and I’m excited to try to share what I can with the Foundation.
A driven business leader and steward for causes dear to her heart, Maureen contributes greatly to non-profit organizations nationwide – primarily contributing to organizations focused on entrepreneurship, women’s issues and youth.
She is married to Sander and they have two children: Selina and Valentin. Valentin was born in June 2013 and diagnosed in December 2015 with PMD. Ever since Marianne is constantly in touch with colleagues from various departments and researchers around the world to find a cure or a treatment and build a strong case to be heard at bio-pharmaceutical companies. Furthermore, she wants to ensure that Europe (ELA – European Leukodystrophies Association) and USA (PMD Foundation) work closely together to achieve our common global goal to cure PMD.
Laura Spear is a longtime founding member of the PMD Foundation and is a Registered Nurse who attended Gloucester County College and LaSalle University. She had both a son (Jared Michael Spear 1/27/91-8/26/10) and a brother (John Michael Laprocido 6/20/66 – 8/16/80) affected by classic PMD.
Rob Gasperetti lives in Franklin Square, New York, which is located on Long Island. He is married to Kristen, and has four sons. Brian (the oldest) and Dylan (the youngest) are affected with PMD, while his middle sons Trevor and Andrew are not. Brian and Dylan were not diagnosed until 2004, when the same symptoms were noticed in both boys.
Patti’s three sons were all affected by PMD, Georgie (4/1/73 – 4/9/85), Adam (6/11/76 – 3/18/01), and Brantley (4/30/82 – 3/24/85). She has a long family history of PMD, their’s is one of the largest PMD families ever studied.
Kristi Roher lives in Gilbert, Arizona, with her husband Bob and their three sons: Carter, Joshua, and Camden. Camden was born on April 8, 2011 and diagnosed with PMD in May of 2012. He is the first generation diagnosed with PMD in their family.
Carlos Labrada is the Vice Chair of The PMD Foundation, after joining the board in 2014. He lives in San Diego, CA with his beautiful family. He and his wife, Yezabel have three children; Samantha, Carlitos, and their younger son, Leonardo, who is 4 years old and affected by PMD.