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“We feel fortunate to have received the diagnosis so soon. We soon found our way to The PMD Foundation and were able to find many answers to our questions. Most importantly, we learned that while PMD is extremely rare, we were not alone.”
- Manley Family, NY
“I reached out to our local PMD community to get in touch with others who had walked the path we were beginning. Several parents shared with me their experiences, gave me strength, and helped me to hope again for Liam.”
- Becker Family
“At last I have a group of like minded people to share my PMD journey!“
- W. Bell
Every September we celebrate Leukodystrophy month with our Run, Walk, or Roll event. Our Warrior Teams raise funds for research and awareness for all of our PMD families. Every mile is in honor of someone who has been affected by PMD or PMLD.
A big thank you to the PMD community as we are off to another strong start to the year from a fundraising perspective!
We raised over $22,000 in the first half of 2024 and look forward to another successful Run, Walk, or Roll to add to this total.
Submitted by Ashley’s mother, Megan:
Ashley was born after a normal pregnancy in July 2014. We started noticing nystagmus around 4 months and, after seeing an ophthalmologist, Ashley had a brain MRI at 6 months. The scan found spots, but we weren’t given a diagnosis.
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