She is married to Sander and they have two children: Selina and Valentin. Valentin was born in June 2013 and diagnosed in December 2015 with PMD. Ever since Marianne is constantly in touch with colleagues from various departments and researchers around the world to find a cure or a treatment and build a strong case to be heard at bio-pharmaceutical companies. Furthermore, she wants to ensure that Europe (ELA – European Leukodystrophies Association) and USA (PMD Foundation) work closely together to achieve our common global goal to cure PMD.
Laura Spear is a longtime founding member of the PMD Foundation and is a Registered Nurse who attended Gloucester County College and LaSalle University. She had both a son (Jared Michael Spear 1/27/91-8/26/10) and a brother (John Michael Laprocido 6/20/66 – 8/16/80) affected by classic PMD.
Rob Gasperetti lives in Franklin Square, New York, which is located on Long Island. He is married to Kristen, and has four sons. Brian (the oldest) and Dylan (the youngest) are affected with PMD, while his middle sons Trevor and Andrew are not. Brian and Dylan were not diagnosed until 2004, when the same symptoms were noticed in both boys.
Patti’s three sons were all affected by PMD, Georgie (4/1/73 – 4/9/85), Adam (6/11/76 – 3/18/01), and Brantley (4/30/82 – 3/24/85). She has a long family history of PMD, their’s is one of the largest PMD families ever studied.
Kristi Roher lives in Gilbert, Arizona, with her husband Bob and their three sons: Carter, Joshua, and Camden. Camden was born on April 8, 2011 and diagnosed with PMD in May of 2012. He is the first generation diagnosed with PMD in their family.
Carlos Labrada is the Vice Chair of The PMD Foundation, after joining the board in 2014. He lives in San Diego, CA with his beautiful family. He and his wife, Yezabel have three children; Samantha, Carlitos, and their younger son, Leonardo, who is 4 years old and affected by PMD.