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“We feel fortunate to have received the diagnosis so soon. We soon found our way to The PMD Foundation and were able to find many answers to our questions. Most importantly, we learned that while PMD is extremely rare, we were not alone.”
- Manley Family, NY
“I reached out to our local PMD community to get in touch with others who had walked the path we were beginning. Several parents shared with me their experiences, gave me strength, and helped me to hope again for Liam.”
- Becker Family
“At last I have a group of like minded people to share my PMD journey!“
- W. Bell
A big thank you to the PMD community as 2025 is off to a good start from a fundraising perspective! We have raised almost $14,000 in the first 6 months of the year following up on the almost $80,000 raised in 2024. With the annual Run, Walk or Roll for PMD & PMLD kicking off we expect this number to increase in the coming months.
Yanyan was born in October 2024. He was very healthy at birth, weighing 3.6kg. My husband and I were very happy to welcome our first child…
A big thank you to the PMD community as 2025 is off to a great start from a fundraising perspective! We have raised almost $12,000 in the first 3 months of the year following up on the almost $80,000 raised in 2024.
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