Judy lives in Gettysburg, Pennsylvania with her husband, Rick, and grandson, Brayden. Brayden turned 8 years old in July 2022 and was diagnosed with PMD when he was one year old. He is the first generation to be diagnosed in their family.
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Brittney lives in Lafitte, Louisiana, with her husband Jonathan, and two boys Zedin (6) and Zayce (2). Zayce was diagnosed with PMD on September 29th, 2021.
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Jeff is the past Board Secretary and past Foundation Chair . Jeff has been on the board and an Executive Committee member since 2001.
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I have been a PMD dad for 28-plus years now, and James has kept me honest all this time. I am semi-retired from a 30-something year career as a special education teacher. I have worked as a volunteer for parent advocacy groups here in Vermont for a long time, and I’m excited to try to share what I can with the Foundation.
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She is married to Sander and they have two children: Selina and Valentin. Valentin was born in June 2013 and diagnosed in December 2015 with PMD. Ever since Marianne is constantly in touch with colleagues from various departments and researchers around the world to find a cure or a treatment and build a strong case to be heard at bio-pharmaceutical companies. Furthermore, she wants to ensure that Europe (ELA – European Leukodystrophies Association) and USA (PMD Foundation) work closely together to achieve our common global goal to cure PMD.
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Steve brings more than 20 years of experience across the nonprofit and business sectors at both regional and national levels. His career in healthcare philanthropy includes work with two leading research and teaching institutions in Northeast Ohio, where he supported innovations advancing medical education from research to the patient’s bedside. Steve has built strong coalitions among grateful patients, physicians, corporate partners, and pharmaceutical sponsors to drive meaningful impact.
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Lee lives in Houston, TX, with his wife Maite and his daughters Sara and Ana (diagnosed with PMLD at 18months).
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Maite was born in Santiago, Chile, and came to live in Houston, TX, in 2000, where she met her husband, Lee. Maite’s career at IBM, Compaq, and HP spanned 15 years in Human Resources and Management Development.
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